About

Lucas Van Wormer playing a small, light-colored ukulele in a cozy, dimly-lit room with pink lighting.

BIO / LUCAS VAN WORMER

Lucas Van Wormer (2002–2021) was an American actor known for his voice work in animated productions like Family Guy and as an advocate for pulmonary hypertension awareness, a rare lung disease with which he lived.

Lucas Van Wormer standing indoors at a restaurant or café with people sitting at tables in the background, a neon sign that reads 'G&B', and a large blue vase with flowers on a white counter.
Lucas Van Wormer wearing headphones in a recording studio, standing in front of a music stand with sheet music, with microphones and recording equipment in the background.

Career and Advocacy

Lucas Van Wormer began his acting career at a young age, with roles in productions such as Jake's Plan (2015), Family Guy (1999), Clarance (2014) and Steadfast Stanley (2014).

At the age of four, Lucas was diagnosed with Idiopathic Pulmonary Hypertension (PH), a rare disease involving high blood pressure in the arteries of the lungs. Despite his challenging health condition, he became a dedicated advocate, using his voice and platform to raise awareness about PH.

Legacy

Lucas passed away on March 2, 2021, at the age of 19, due to complications from pulmonary hypertension. His parents, Steve and Marina Van Wormer, continue his legacy through the "#Hearts4Lucas" initiative and through various Lucas Van Wormer Legacy Funds, for those who wish to contribute to the causes Lucas championed.

Camp Del Corazon - a 501(c)3 nonprofit that provides year-round camp experiential opportunities for children faced with the challenges of growing up and living with heart / lung disease. This was Lucas' favorite place. Please ensure to denote "dedicated as a gift in memory of Lucas Van Wormer."

Phaware Global Association - a 501(c)3 nonprofit that continues to create innovative technology and to raise global pulmonary hypertension awareness through engagement and innovation as we forge a new course to a cure. Please ensure to denote "in memory of Lucas" in the Tribute/Special Instructions.

Stanford University Lucas Van Wormer Memorial Fund - (Lucas Legacy Link) The amazing PH doctors at Stanford have collaborated with phaware on a groundbreaking research study to monitor a person's pulmonary hypertension and determine their quality of life through the Heart Works mobile app, which leverages apple and android phones and smart watches. They have established a fund in Lucas' name to support this important research validation study. In the special instructions/other designation box, note Lucas Van Wormer Memorial Fund. There’s also a place for people to note that the gift is in memory of Lucas.

The Pediatric Pulmonary Hypertension Network (PPHNet) has established an innovative research trainee award in his name, the Lucas Van Wormer Research Award.